Peanut has had two check-ups in the last seven days and the DW is diligently working on an update for everyone. In the meantime, I thought I’d tackle one of the questions we’re asked quite often: Does Peanut sleep through the night? The answer: I don’t know. Here’s a look at one of the more typical, non-doctor, days for Peanut and why I can’t really say if she sleeps through the night or not.
6:30: While trying to keep Peanut asleep, the DW or I change Peanut’s diaper, empty her ostomy bag, administer her meds, and get her dressed for the day. Then (on weekdays) it’s into the car seat and off Grandma and Grandpa’s (unless it’s Tuesday – which is Nana O.’s day to come and spend the day at our house with Peanut).
7:00: Breakfast – 10 teaspoons of rice baby cereal mixed with milk followed by an 80 ml (almost 3 oz) bottle of milk.
7:30 – 10:00 – Play time with Grandpa. This is Peanut’s favorite time of day and Grandpa doesn’t let it go to waste. Peanut has a specific list of physical therapy exercises, in addition to the classic “tummy-time”, to help her catch up with her motor skills and prepare her for her next surgery.
10:00: Morning “Snack” – 1 oz of green beans and another 80 ml of milk, but first the diaper-change-empty-bag-administer-meds routine.
10:30 – 1:00: Maybe a little more playtime with Grandpa and then a nap.
1:00: Lunch – the diaper-change-empty-bag-administer-meds routine and then 10 teaspoons of rice baby cereal followed by 80 ml of milk.
1:30 – 4:00: Again with the playing and napping.
4:00: Afternoon “Snack” – just like at 10 – the diaper-change-empty-bag-administer-meds routine and then 1 oz of green beans and another 80 ml of milk.
4:30 – 6:00: Playtime with Grandma that normally ends with a nap.
6:00: In the car seat and back home.
7:00: Supper – the diaper-change-empty-bag-administer-meds routine and then 10 teaspoons of rice baby cereal followed by 80 ml of milk.
7:30 – 10:00: Peanut spends the first part of the evening watching her older siblings dart around the house as everyone wraps up the day and prepares for the next. All of Peanut’s bottles for the next 24 hours are prepared at this time since they need to be a specific mixture of breast milk, pregestimil formula, and salt (yup, I said salt – to balance out her low sodium). Once Peanut’s interest in all the excitement wears off (or her siblings head off to bed) she wants to be snuggled up and tries to fight off falling asleep. It’s a fight that normally doesn’t last too long and Peanut has yet to win. She’s normally asleep by 9 and sleeps soundly until…
10:00: Bedtime “Snack” – Peanut wakes up during the diaper-change-empty-bag-administer-meds routine. At this time, her central line is prepared and the DW or I connect the line to the pump that delivers her daily dose of replacement fluids. This used to be the TPN solution that aided in Peanut’s nutrition, but as she grows and is taking more food by mouth she only needs replacement fluids to make sure she stays properly hydrated. The IV is hooked up over night for a couple key reasons. First, it’s not the handiest thing to carry around with Peanut. Second, Peanut has hit the grab and chew stage. Since the line is connected and disconnected while she’s sleeping there’s little risk of her getting in trouble with it. This process is capped off with an 80 ml bottle of milk – a bedtime snack.
10:15 – 1:00: Peanut is normally back to sleep pretty quick after her 10pm bottle and it’s off to bed for her. Either the DW or I – whoever is spending the night with Peanut – will put her to bed and head to the recliner in the next room for the next few hours. Since we knew before we ever brought Peanut home that her night schedule could be disruptive to the rest of the kiddos, we set her nursery up downstairs in the spare room and away from the bedrooms upstairs. It means the recliner or couch in the living room becomes the bed for the DW or I (we rotate nights), but everyone else in the house gets a good night sleep. (And we all know how much smoother a house full of kiddos runs on a good night’s sleep.)
1:00: Time to wake Peanut. She’s still sound asleep. A quick diaper-change-empty-bag-administer-meds routine, an 80 ml bottle of milk, and back to bed. Since Peanut still can’t tell time, we’ll call it her Midnight Snack.
1:30 – 4:00: Peanut is back in bed and comfortably asleep. She quickly grew accustomed to the sound of the IV pump after a couple of nights with it way back in October, so she doesn’t even flinch with it’s occasional whirl.
4:00: Time to wake Peanut, again. This time, in addition to the diaper-change-empty-bag-administer-meds routine, Peanut also needs to be disconnected from her IV fluids. Her central line needs to be flushed and filled with heparin or ethanol, depending on the day, to help guard against blood clots and infection. Though the DW and I have gotten pretty good at connecting and disconnecting the IV line – when the connection/disconnection times weren’t the same time as a feeding, we used to be able to do it without waking her – Peanut normally is wide awake by the time she’s finished on the changing table. Oddly enough, she normally has the biggest smile for me at this time – it sure makes waking up to that 4am alarm much easier.
4:30 – 6:30: Peanut’s back to sleep until 6:30 and the routine starts over again with the new day.
So, does Peanut sleep through the night? I’m guessing she would sleep for quite a stretch if we didn’t wake her up. And speaking of that, why do we wake her up? The DW has mentioned it in passing before, but with Peanut’s digestive condition everything that goes into her is specifically prepared, measured, and given to her on a schedule so her remaining intestines aren’t overwhelmed and the doctors can monitor how she tolerates her feedings. Plus, everything that goes in is weighed and recorded when it comes back out. Keeping this task on a 3 hour schedule allows for Peanut’s output to be tracked more accurately. And finally, Peanut’s meds. Peanut is on a series of medications. In order to get everything in during the course of the day without taking any two meds at the same time (as one can interfere with the absorption of the other) eight different feeding times is just enough to get everything in.
I’m just hoping I’m not punished down the road for being a repeat offender for breaking that old rule: never wake a sleeping baby…